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15 June, 2021
Professor Steve McKenna Joins Advisory Board
We are pleased to announce that our Professor Steve McKenna has joined the Patient Access & Affordability Project (PAAP) Advisory Board. – More...
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21 July, 2020
Composite outcome measurement in clinical research: The triumph of illusion over reality?
'Composite outcome measurement in clinical research: The triumph of illusion over reality?' has now been published. – More...
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21 July, 2020
Research Article: The contribution of need fulfilment to quality of life
'The contribution of need fulfilment to quality of life: A reflection on the relation between the needs-based model of quality of life and Max-Neef’s theory of Human Scale Development' has now been published. – More...
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08 May, 2019
European e-Health Care Model for Rare Degenerative Diseases
Galen Research is working in collaboration with a multinational research team to develop a European e-Health care model. – More...
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06 March, 2019
The Impact of Plexiform Neurofibromas on Need Fulfilment in Adults with Neurofibromatosis Type 1
'A Qualitative Study of the Impact of Plexiform Neurofibromas on Need Fulfilment in Adults with Neurofibromatosis Type 1' has now been published. – More...
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11 January, 2019
Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?
'Measurement of Patient-Reported Outcomes. 2: Are Current Measures Failing Us?' has now been published. – More...
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10 January, 2019
Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail
'Measurement of Patient-Reported Outcomes. 1: The Search for the Holy Grail' has now been published – More...
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10 January, 2019
An Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures
'It is Time for an Organised, Scientific Approach to the Application of Patient-Reported Outcome Measures in Clinical Studies and Trials' has now been published. – More...
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August 2018
Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)
'Measuring the Impact of Caring for a Spouse with Alzheimer’s Disease: Validation of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue)' has now been published. – More...
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June 2018
Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based
The assessment of “patient value” is fundamental to clinical trials, real world evidence studies, and outcomes-based reimbursement schemes. Measures of health-related quality-of-life (HRQoL) are widely used in health research. – More...
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February 2018
What’s it like to live with Intestinal Failure?
Galen Research has published the article ‘The impact of Home Parenteral Nutrition on the lives of adults with Type 3 Intestinal Failure’ in Clinical Nutrition ESPEN. – More...
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May 2017
Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ)
The article ‘Development and validation of the Parenteral Nutrition Impact Questionnaire (PNIQ), a patient-centric outcome measure for Home Parenteral Nutrition’ has now been published in Clinical Nutrition. The abstract can be found below: – More...
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September 2016
The Limitations of Patient-Reported Outcome Measurement in Oncology
Galen's Director of Research, Stephen McKenna, talks about the limitations of PRO measurement in Oncology in 'Journal of Clinical Pathways'. – More...
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May 2016
What’s it like to live with Crohn’s Disease?
Galen Research has published an article describing what it is like to live with Crohn’s Disease (CD). http://fg.bmj.com/cgi/content/full/flgastro-2015-100678 – More...
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April 2016
Jeanette celebrates 10 years at Galen Research
April welcomed our very own Jeanette Wilburn’s 10-year anniversary at Galen Research. To mark this special occasion, we sat down with Jeanette to ask about her time here at Galen Research and how the company has changed over the years. – More...
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April 2016
Publication of a new article regarding the CAMPHOR
Health and Quality of Life Outcomes has published the article “Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR)” (10.1186/s12955-016-0462-2). – More...
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March 2016
Galen Research relocates!
This month saw the employees of Galen Research move into their new office workspace. – More...
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February 2016
Co-calibration of the ALIS, CAMPHOR and LCOPD
The full article for “Co-calibrating quality-of-life scores from three pulmonary disorders: implications for comparative-effectiveness research” has now been published in the Journal of Medical Economics. – More...
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January 2016
Greek adaptation and validation of the ASQoL
"Greek adaptation and validation of the Ankylosing Spondylitis Quality of Life (ASQoL) measure" has been published in the Greek medical journal Hippokratia. – More...
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December 2015
Favourable feedback from the European Medicines Agency
Galen received a positive evaluation from the European Medicines Agency (EMA) on the methodology they are using to develop a new outcome measure for patients with neurofibromatosis type 1 with associated plexiforms. – More...
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December 2015
Portuguese adaptation of rheumatology measures
Professor Stephen McKenna, Jessica Stepanous and Alice Heaney travelled to Portugal this month to adapt three of Galen’s rheumatology outcome measures. – More...
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September 2015
Publication of a new article regarding the CLIQ
Quality of Life Research journal has published the article “Assessing quality of life in Crohn’s disease: development and validation of the Crohn’s Life Impact Questionnaire (CLIQ)” (DOI:10.1007/s11136-015-0947-1). – More...
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April-September 2015
New languages of our Psoriatic Arthritis Quality of Life (PsAQoL) measure
We have recently adapted the PsAQoL into 18 new language versions. – More...
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August 2015
New members of staff
This year welcomed two new Research Assistants to the Galen team. – More...
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January 2015
Co-calibration of the PSORIQoL and QoLIAD
The full article for “Comparing the impact of psoriasis and atopic dermatitis on quality of life: co-calibration of the PSORIQoL and QoLIAD” (DOI:10.1007/s11136-014-0630-y) has now been published in Quality of Life Research. – More...
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11 November, 2014
Assessing quality of life in adult growth hormone deficiency: Further development of the QoL-AGHDA
This poster outlines the further development of the Quality of Life Assessment of Growth Hormone Deficiency in Adults (QoL-AGHDA), which is a patient reported outcome measure. This includes the adaptation of the QoL-AGHDA for other languages. – More...
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06 October, 2014
Publication of a new article regarding the RAQoL.
A new article entitled "Further international adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire" (DOI: 10.1007/s00296-014-3138-4) has been published in Rheumatology International – More...
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05 September, 2014
Rasch analysis of the Dermatology Life Quality Questionnaire (DLQI)
The purpose of this presentation is to discuss good scale development methodology in the context of Rasch analysis. – More...
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02 September, 2014
Crohn’s Life Impact Questionnaire (CLIQ) presentation now available
A presentation regarding the development of the Crohn's Life Impact Questionnaire (CLIQ) is now available to view. – More...