Since its formation in 1988 Galen Research Ltd has consistently developed patient-reported outcome (PRO) measures using the most up to date and rigorous methods. Our robust methodology ensures that our measures are developed to the highest of standards and are able to yield more accurate and reliable data than other measures currently on the market.  Consequently, Galen has established a comprehensive database of over 30 PRO measures that cover a range of disease groups.

The fundamental premise of PROs is to collect information on the patient from the patient’s perspective. The content of our measures is derived from patients’ own statements about their experiences of illness and the treatments they have experienced. This ensures that the items are relevant and specific to the impact of the target disease. With the exception of the Nottingham Health Profile (NHP), our measures are disease-specific.

The measures listed below have been developed and validated in line with FDA and EMA recommendations and guidelines.

Area Instrument
Cardiology
  • CAMPHOR - Cambridge Pulmonary Hypertension Outcome Review

    Language Adaptations Available:

    CodeCountryLanguage
    AUZ/NZAustralia/New ZealandEnglish
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    HUHungaryHungarian
    ILIsraelHebrew
    ITItalyItalian
    PLPolandPolish
    PTPortugalPortuguese
    RSSerbiaSerbian
    SESwedenSwedish
    UKUKEnglish
    US-ENUSAEnglish

    CAMPHOR UK - First page sample.pdf

Carers
Dermatology
  • PIQoL-AD - Parents’ Index of Quality of Life in Atopic Dermatitis

    Language Adaptations Available:

    CodeCountryLanguage
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    NLNetherlandsDutch
    US-ENUSAEnglish

    PIQoL-AD UK boy - First page sample.pdf

  • PRISM - Patient-Reported Impact of Scars Measure

    Language Adaptations Available:

    CodeCountryLanguage
    UKUKEnglish

    PRISM Booklet UK - First page sample.pdf

  • PSORIQoL - Psoriasis Index of Quality of Life

    Language Adaptations Available:

    CodeCountryLanguage
    ARArgentinaSpanish
    AUAustraliaEnglish
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    TRTurkeyTurkish
    US-ENUSAEnglish

    PSORIQoL UK - First page sample.pdf

  • QoLIAD - Quality of Life Index for Atopic Dermatitis

    Language Adaptations Available:

    CodeCountryLanguage
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    JPJapanJapanese
    NLNetherlandsDutch
    UKUKEnglish
    US-ENUSAEnglish

    QoLIAD UK - First page sample.pdf

Endocrinology
  • QoL-AGHDA - Quality of Life Assessment of Growth Hormone Deficiency in Adults

    Language Adaptations Available:

    CodeCountryLanguage
    BE-FLBelgiumFlemish
    BE-FRBelgiumFrench
    BRBrazilPortuguese
    CZCzech Rep.Czech
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    FRFranceFrench
    GKGreeceGreek
    HUHungaryHungarian
    ILIsraelHebrew
    ITItalyItalian
    NLNetherlandsDutch
    PLPolandPolish
    RORomaniaRomanian
    RSSerbiaSerbian
    RURussiaRussian
    SESwedenSwedish
    SKSlovakiaSlovakian
    SLSloveniaSlovenian
    UAUkraineUkrainian
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish

    QoL-AGHDA UK - First page sample.pdf

Gastroenterology
Generic
  • NHP - Nottingham Health Profile

    Language Adaptations Available:

    CodeCountryLanguage
    BE-FRBelgiumFrench
    BE-NLBelgiumDutch
    BRBrazilPortuguese
    CA-FRCanadaFrench
    CZCzech Rep.Czech
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    ES-CATSpainCatalan
    FIFinlandFinnish
    FRFranceFrench
    GRGreeceGreek
    HUHungaryHungarian
    ITItalyItalian
    JPJapanJapanese
    NLNetherlandsDutch
    NONorwayNorwegian
    PLPolandPolish
    PTPortugalPortuguese
    RORomaniaRomanian
    RSSerbiaSerbian
    SESwedenSwedish
    SKSlovakiaSlovakian
    TRTurkeyTurkish
    UKUKEnglish
    US-ENUSAEnglish

    NHP UK - First page sample.pdf

Infectious disease
Neurology
  • MSQoL - Migraine-Specific Quality of Life measure

    Language Adaptations Available:

    CodeCountryLanguage
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    FIFinlandFinnish
    FRFranceFrench
    ITItalyItalian
    UKUKEnglish
    US-ENUSAEnglish

    MSQoL UK - First page sample.pdf

  • PRIMUS - Patient Reported Outcome indices for Multiple Sclerosis

    Language Adaptations Available:

    CodeCountryLanguage
    AUZ/NZAustralia/New ZealandEnglish
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    SESwedenSwedish
    US-ENUSAEnglish
    US-ESUSASpanish

    PRIMUS Booklet UK - First page sample.pdf

  • U-FIS - Unidimensional Fatigue Impact Scale

    Language Adaptations Available:

    CodeCountryLanguage
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    SESwedenSwedish
    US-ENUSAEnglish

    U-FIS UK - First page sample.pdf

Psychiatry
  • QLDS - Quality of Life in Depression Scale

    Language Adaptations Available:

    CodeCountryLanguage
    AUAustraliaEnglish
    BRBrazilPortuguese
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    FIFinlandFinnish
    FRFranceFrench
    HUHungaryHungarian
    ILIsraelHebrew
    ITItalyItalian
    MoMorrocoSpanish
    NLNetherlandsDutch
    NONorwayNorwegian
    RURussiaRussian
    SESwedenSwedish
    TRTurkeyTurkish
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish
    ZASouth AfricaAfrikaans
    ZA-EngSouth AfricaEnglish

    QLDS UK - First page sample.pdf

Respiratory
  • ALIS - Asthma Life Impact Scale

    Language Adaptations Available:

    CodeCountryLanguage
    BE-FRBelgiumFrench
    BE-NLBelgiumDutch
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    NLNetherlandsDutch
    RURussiaRussian
    SESwedenSwedish
    TRTurkeyTurkish
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish

    ALIS UK - First page sample.pdf

  • LCOPD - Living with Chronic Obstructive Pulmonary Disease

    Language Adaptations Available:

    CodeCountryLanguage
    BE-FLBelgiumFlemish
    BE-FRBelgiumFrench
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    FRFranceFrench
    ITItalyItalian
    NLNetherlandsDutch
    RURussiaRussian
    SESwedenSwedish
    TRTurkeyTurkish
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish

    LCOPD UK - First page sample.pdf

Rheumatology
  • ASQoL - Ankylosing Spondylitis Quality of Life measure

    Language Adaptations Available:

    CodeCountryLanguage
    ARArgentinaSpanish
    BE-FLBelgiumFlemish
    BE-FRBelgiumFrench
    BGBulgariaBulgarian
    BRBrazilPortuguese
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    CLChileSpanish
    CNChinaSimplified Chinese
    CZCzech Rep.Czech
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    ESTEstoniaEstonian
    FIFinlandFinnish
    FI-SEFinlandSwedish
    FRFranceFrench
    GRGreeceGreek
    HRCroatiaCroatian
    HUHungaryHungarian
    ILIsraelHebrew
    ITItalyItalian
    JPJapanJapanese
    KRKoreaKorean
    MXMexicoSpanish
    NLNetherlandsDutch
    NONorwayNorwegian
    NZNew ZealandEnglish
    PEPeruSpanish
    PHPhilippinesTagalog
    PLPolandPolish
    RORomaniaRomanian
    RURussiaRussian
    SESwedenSwedish
    SG-CNSingaporeChinese
    SG-ENSingaporeEnglish
    SG-MYSingaporeMalay
    SKSlovakiaSlovakian
    TRTurkeyTurkish
    TWTaiwanTraditional Chinese
    UAUkraineUkrainian
    UA-RUUkraineRussian
    UAEUAEArabic
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish
    ZASouth AfricaAfrikaans
    ZA-EngSouth AfricaEnglish

    ASQoL UK - First page sample.pdf

  • OAQoL - Osteoarthritis Quality of Life measure

    Language Adaptations Available:

    CodeCountryLanguage
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    HUHungaryHungarian
    ITItalyItalian
    TRTurkeyTurkish
    UKUKEnglish

    OAQoL UK - First page sample.pdf

  • PsAQoL - Psoriatic Arthritis Quality of Life measure

    Language Adaptations Available:

    CodeCountryLanguage
    ARArgentinaSpanish
    AUAustraliaEnglish
    BE-FLBelgiumFlemish
    BE-FRBelgiumFrench
    BGBulgariaBulgarian
    BRBrazilPortuguese
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    CZCzech Rep.Czech
    DEGermanyGerman
    ESSpainSpanish
    FRFranceFrench
    HUHungaryHungarian
    ILIsraelHebrew
    ITItalyItalian
    MXMexicoSpanish
    NLNetherlandsDutch
    PEPeruSpanish
    PHPhilippinesTagalog
    PLPolandPolish
    PTPortugalPortuguese
    RORomaniaRomanian
    RURussiaRussian
    SESwedenSwedish
    SG-CNSingaporeChinese
    SG-ENSingaporeEnglish
    SG-MYSingaporeMalay
    SKSlovakiaSlovakian
    THThailandThai
    TRTurkeyTurkish
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish

    PsAQoL UK - First page sample.pdf

  • RAQoL - Rheumatoid Arthritis Quality of Life Questionnaire

    Language Adaptations Available:

    CodeCountryLanguage
    ARArgentinaSpanish
    AUAustraliaEnglish
    BE-FRBelgiumFrench
    BE-NLBelgiumDutch
    BGBulgariaBulgarian
    BRBrazilPortuguese
    CA-ENCanadaEnglish
    CA-FRCanadaFrench
    CZCzech Rep.Czech
    DEGermanyGerman
    DKDenmarkDanish
    ESSpainSpanish
    ESTEstoniaEstonian
    FRFranceFrench
    GTGuatemalaSpanish
    HUHungaryHungarian
    ITItalyItalian
    JPJapanJapanese
    MXMexicoSpanish
    NLNetherlandsDutch
    NONorwayNorwegian
    PAPanamaSpanish
    PEPeruSpanish
    PLPolandPolish
    RORomaniaRomanian
    RSSerbiaSerbian
    RURussiaRussian
    SESwedenSwedish
    SKSlovakiaSlovakian
    THThailandThai
    TRTurkeyTurkish
    UAUkraineUkrainian
    UA-RUUkraineRussian
    UKUKEnglish
    US-ENUSAEnglish
    US-ESUSASpanish

    RAQoL UK - First page sample.pdf

  • LQoL - Systemic Lupus Erythematosus Quality of Life

    Language Adaptations Available:

    CodeCountryLanguage
    ESTEstoniaEstonian

    L-QoL UK - First page sample.pdf

Surgery
Women’s health
Wound healing

Work is currently underway on measures for:

  • Dupuytren’s Disease
  • Stretch marks
  • Ulcerative Colitis
  • Plexiform Neurofibroma
  • Intestinal Disease

Measure Enquiry.
New measure commissions.