Galen Research - the Science of Measurement

Since its formation in 1988 Galen Research Ltd has consistently developed patient-reported outcome (PRO) measures using the most up to date and rigorous methods. Our robust methodology ensures that our measures are developed to the highest of standards and are able to yield more accurate and reliable data than other measures currently on the market.  Consequently, Galen has established a comprehensive database of over 30 PRO measures that cover a range of disease groups.

The fundamental premise of PROs is to collect information on the patient from the patient’s perspective. The content of our measures is derived from patients’ own statements about their experiences of illness and the treatments they have experienced. This ensures that the items are relevant and specific to the impact of the target disease. With the exception of the Nottingham Health Profile (NHP), our measures are disease-specific.

The measures listed below have been developed and validated in line with FDA and EMA recommendations and guidelines.

Area Instrument
Cardiology
  • CAMPHOR - Cambridge Pulmonary Hypertension Outcome Review
Carers
  • ACQLI -Quality of Life of Carers of Alzheimer’s Disease Patients
Dermatology
  • QoLIAD - Quality of Life Index for Atopic Dermatitis
  • PIQoL-AD - Parents’ Index of Quality of Life in Atopic Dermatitis
  • PSORIQoL - Psoriasis Index of Quality of Life
  • PRISM - Patient-Reported Impact of Scars Measure
Endocrinology
  • QoL-AGHDA - Quality of Life Assessment of Growth Hormone Deficiency in Adults
Gastroenterology
  • BOCLIR - Bowel Cleansing Impact Review
Generic
  • NHP - Nottingham Health Profile
Infectious disease
  • RGHQoL - Recurrent Genital Herpes Quality of Life
  • HOIQ - Herpes Outbreak Impact Questionnaire
  • HSC - Herpes Symptom Checklist
  • FDM - Family Disruption Measure-Chickenpox
Neurology
  • MSQoL - Migraine-Specific Quality of Life measure
  • U-FIS - Unidimensional fatigue impact scale
  • PRIMUS - Patient Reported Outcome indices for Multiple Sclerosis
Psychiatry
  • QLDS - Quality of Life in Depression Scale
Respiratory
  • LCOPD - Living with Chronic Obstructive Pulmonary Disease
  • ALIS - Asthma Life Impact Scale
Rheumatology
  • ASQoL - Ankylosing Spondylitis Quality of Life measure
  • PsAQoL - Psoriatic Arthritis Quality of Life measure
  • RAQoL - Rheumatoid Arthritis Quality of Life Questionnaire
  • LQoL - Systemic Lupus Erythematosus Quality of Life
  • OAQoL - Osteoarthritis Quality of Life measure
Surgery
  • POW-A - Post-Operative Well-Being - Abdominal
  • WISP - Well-Being in Surgical Patients
Women’s health
  • IQoLI - Incontinence Quality of Life Index
  • UGAQoL - Urogenital Atrophy Quality of Life
Wound healing
  • DFUQoL - Diabetic Foot Ulcer Quality of Life
  • VLUQoL - Venous Leg Ulcer Quality of Life

Work is currently underway on measures for:

  • Dupuytren’s Disease
  • Stretch marks
  • Crohn’s Disease
  • Myelodysplastic syndrome (MDS)

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